I have a tendency to freak out, overreact, jump to conclusions...and it has only gotten worse since having my children. I want only the best for them and when I feel as though they (or myself) have been cheated in any way, I attack!!
After writing the post about Lilee's surgery, and reading all the concerned comments, I realized that I needed to talk to a Dr. and figure out exactly what went wrong. SO, I called. I talked to a nurse. I felt like I was getting the run around. I panicked and went on defense mode. Another nurse called me. I told her I needed answers and I needed them now. Another nurse called me, "I have Dr. Argueso here right now, would you like to talk to him?" OF COURSE I WOULD!! I was a bit nervous at first. When Dr. Argueso handled Keat's surgery when he was a baby, I loved him. He was awesome. Dealing with him this time in the office for Lilee was a little less than desired. I already had a bad taste in my mouth and was worried he wouldn't be honest with me. BOY WAS I WRONG. HE WAS FABULOUS!! I told him what I had understood by what he had told me. HE APOLOGIZED to ME and said that when he gets in the zone of doing surgeries(they do a TON in a row right after each other on Monday and Fridays) he often forgets to give parents all the details that they need. He also told me later that 80% of his job is dealing with concerned moms and that he has been married 28 years and he KNOWS the mind of a woman and he completely understood my worry. He was happy to set the record straight!! It was great to get some better answers. So, here is what I know!
Lilee's "condition" did NOT get WORSE. It is still a level 2. When they go in for surgery, it is like another test that they can't do any other way than going in. During Lilee's surgery, they discovered that Lilee had no "branches" to her ureters. This is what he meant when he told us that "it went all the way up". What they do during a DEFLUX(which is what Lilee's surgery is called) is inject a liquid into the branches to inflate them and create a barrier to keep the urine from splashing into the kidneys. However, if you don't have the branches to inflate, it creates much more difficulty, which is what happened in Lilee's case. That is why we have to get her tested again for REFLUX in 2 months. If it has gone away, GREAT...the DEFLUX worked and we're good to go. If it hasn't, we will need to resort to open surgery to go in and actually CORRECT the problem. Dr. Argueso told me that you kind of have to look at the DEFLUX procedure as a stepping stone. It is just another "step" in finding out what to do. So, hopefully it works and we don't have to go back and put Lilee through any more.
Prayers are still very welcome! It's great to know Lilee is in good hands and that she is being cared for in the best possible way! There's the update!!
In other news, the migraine is gone...after 5 days of the yuckies, it is COMPLETELY GONE!! I got in to see a neurologist. We will be running some tests to figure out if everything is okay and the best way to treat me. Unfortunately, we'll have to put our baby making attempts on hold for the moment to get all the tests done. I know Heavenly Father has a plan and this is just part of it for us. It will happen when it is meant to happen.